Chronic Fatigue — a living nightmare
by Doris Fleck |
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As I drove out of Vancouver on a warm sunny day in mid-February,
I felt so unwell. Along with fatigue, dizziness and blurred vision I also felt a
burning sensation at the base of my neck.
It was the third time in six weeks I had come down with flu-like symptoms, but
this time they seemed more intense.
At 25 years of age, I was extremely busy juggling university classes, two
part-time jobs and church involvement. I certainly had no time for illness.
The symptoms became more severe and I considered going to the hospital. As I
approached the Port Mann Bridge I suddenly became very dizzy. I panicked! What
if I passed out while I was driving over the bridge?
My heart was racing and I began to gasp for air. A progressive numbness cascaded
over my neck and down my upper body. Was I becoming paralyzed? My panic
increased. I thought I might be having a stroke. I began praying out loud,
begging God to spare my life.
Thankfully, I was over the bridge in a minute. Relieved, I drove to the
look-out station on the other side. I intended to rest for awhile and
then continue on, but the numbness had already spread to my legs. I was
so frightened I called an ambulance and was rushed to the nearest
hospital in Surrey.
Thus began six years of confusion,
questions, emergency room visits and medical testing. My symptoms
confounded over 40 doctors and specialists until I was finally diagnosed
with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (CFS) as it
is commonly referred to today.
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A healthy Doris Fleck
- photo courtesy Peter Fleck |
When I became sick in 1986, few
physicians knew anything about CFS. It is reported that over 70 per cent
of people afflicted with CFS in America are Caucasian women in their
early 20s to mid-40s.
Although many see a measure of recovery and some regain complete health,
others are severely disabled for a period of years. For a few, the
disease never goes away. I went from being a very active, energetic,
enthusiastic person to bedridden in days.
The fatigue that plagued me was something I had never experienced before. I
wasn’t just tired; I felt like I had 20 pound weights attached to my arms and
legs. This was combined with a litany of other symptoms that included muscle
pain, heart palpitations, night sweats, cold hands and feet, numbness, intense
pressure in my head, inability to concentrate, insomnia and nausea. I quickly
became intensely afraid of what was happening to me. |
I had to drop out of university and spent the next year and a half, using what
energy I had, searching for solutions.
Since no quick diagnostic tool is available, most CFS sufferers have to undergo
a plethora of medical tests to rule out other diseases and I was no exception. I
gave hundreds of blood samples and litres of urine as I was tested for lupus,
rheumatoid arthritis, diabetes, thyroid disfunction, cardiac problems, cancer
and a host of other ailments. I underwent a CT-scan to rule out multiple
sclerosis and the possibility of a brain tumor.
Necessary functions became almost insurmountable. Walking a few feet to the
bathroom was so exhausting, I felt like I was trying to conquer Everest. I began
measuring every action in terms of the energy it consumed and how much recovery
time I would need afterwards. Over the next nine years fully half of my days
were spent lying in bed, trying to gather strength for eating, talking and
bathing. It was a living nightmare.
In the early 1990s, it was estimated 90 million people world wide were
afflicted with CFS. Treatment options have been scarce. Although doctors
have now given credibility to CFS and are capable of making a relatively
quick diagnosis (three months to a year), their inability to effectively
treat the disease has caused multitudes to turn to alternative health
care.
Many people with CFS have been found to be plagued by parasites and
on-going candidiasis, a form of yeast infection, as well as suffering from
hypoglycemia.
Personally, I found a good naturopath and allergist within the first 18
months. Sticking to a strict diet, fighting off the candida and making use
of massage therapy helped me immensely. Even though I had two severely
debilitating relapses that lasted at least a year in length, I have found
a doctor that keeps apprised of the current research on CFS treatments.
Use of B-12 injections combined with Magnesium Sulfate has proven
beneficial. A combination of prescription drugs for sleeping and natural
remedies along with on-going prayer have helped keep me relapse free for
the last seven years.
I am so thankful to be alive. Each day when I awake with energy to work
and enjoy life I am grateful. Without the support of an amazing husband,
caring family, compassionate friends, and a church group that supplied
meals and prayer, I don’t know if I would be alive today |
For more information on CFS, contact The Nightingale Research Foundation at
www.nightingale.ca .
Two excellent resource books with solid advice on treatment
are; Solving the Puzzle of Chronic Fatigue Syndrome by Dr. Michael Rosenbaum &
Dr. Murray Susser and Chronic Fatigue Syndrome: Treatment Guide by Erica
Verrillo & Lauren Gellman.
If you would like to contact Doris directly, e-mail her at
doris@calgarychristian.com . |
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